Finding Your Multiple Sclerosis Care Team
Receiving a diagnosis of Multiple Sclerosis (MS) can be an overwhelming experience. The uncertainty and complexities of the condition can leave you feeling anxious and uncertain about what lies ahead. However, one of the most important steps you can take on your journey with MS is assembling the right care team to support you every step of the way.
Watch the video: Finding Your Multiple Sclerosis Care Team
Who Needs to Be Part of Your MS Care Team?
Building an effective MS healthcare team and ensuring seamless communication among its members can significantly impact your overall well-being.
Before you embark on your quest, it’s essential to understand the diverse roles of different healthcare professionals and how they can help you develop your treatment plan.
Primary Care Physicians
Your primary care physician (PCP) is fundamental to your MS care team. They serve as the initial point of contact for your healthcare needs and can help coordinate your overall medical care.
While not specialized in MS treatment, they can assist in managing other health issues, coordinating referrals to specialists, and ensuring your overall well-being.
Neurologists
Your neurologist will play a central role in managing your MS. They are specialized in diagnosing and treating neurological disorders, making them the cornerstone of your care team.
Neurologists are responsible for prescribing medications, monitoring your disease progression, and helping you make informed decisions about treatment options.
Biologic Infusion Nurses
If your treatment plan includes biologic infusions, you’ll have dedicated nurses who administer these therapies.
These nurses are skilled in the safe delivery of infusions and can provide vital information and support during your treatment sessions.
Physical Therapists
MS can affect mobility and physical function. A physical therapist can help you develop exercises and strategies to maintain or improve your physical abilities. They can also offer guidance on mobility aids and assistive devices.
Mental Health Specialists
The emotional toll of an MS diagnosis can be significant. Mental health specialists, such as psychologists or counselors, can provide essential emotional support and strategies for coping with the psychological aspects of living with MS.
Tips for Finding the Right MS Care Team
Become Your Advocate
Take an active role in your healthcare journey. There are many resources to help educate yourself about MS, its symptoms, and treatment options.
Be vocal about your needs and concerns, and don’t hesitate to seek a second opinion if necessary.
Seek the Help of Specialists
MS is a complex condition, and it’s essential to have experts on your team.
Depending on your symptoms, you may benefit from consulting other specialists beyond your neurologist, such as ophthalmologists, urologists, neuropsychologists, and speech pathologists.
Recognize, Document, and Discuss Your MS Symptoms
Keep a journal of your symptoms and their progression. This will help your healthcare team make informed decisions about your treatment.
Discuss any changes or concerns with your primary healthcare and neurologist during regular appointments.
Get Your Team to Work Together
Coordination among your healthcare providers is crucial. Create a contact list that includes all your doctors, therapists, nurses, and nutritionists, and ensure they are in communication with each other. This will help streamline your care and ensure everyone is on the same page.
Build a Support System
Don’t underestimate the power of friends and family in your MS journey. Share your diagnosis with loved ones and lean on them for emotional support.
Consider joining MS support groups or online communities to connect with others facing similar challenges.
Choose A Provider Who Offers In-Office Biologic Infusions
Having a doctor who provides in-office biologic infusions can offer several advantages, including:
Convenience: In-office infusions save you the time and effort of traveling to a separate facility, making treatment more accessible.
Immediate Assistance: Medical assistance is readily available if you experience any adverse reactions during the infusion.
Monitoring: In-office infusions allow for closer monitoring of your treatment progress, allowing your MS team to make necessary adjustments promptly.
Personalized Care: Your doctor can tailor the infusion experience to your needs, making it as comfortable as possible.
Helpful Resources
Building a strong MS care team is crucial to managing your condition effectively. The following resources can help you find the right professionals to help you manage your condition:
Find a Doctor: The National MS Society offers a comprehensive directory of MS specialists. You can access it here.
Information and Education: Knowledge is a great ally on your MS journey. You can find a wealth of information regarding advocacy, educational programs, and support here.
Online Communities: You can find support groups and join online communities through The National Multiple Sclerosis Society here.
You may also choose to join myMSteam, the largest social network for individuals living with multiple sclerosis.
Remember, you don’t have to face this journey alone. Building a strong MS care team will help create a support network that empowers you to live your best life despite the many challenges a multiple sclerosis diagnosis poses.
